Update
It’s been 3 weeks since my son went soy free and egg free. He actually got some eczema around his mouth after he went off of them which hasn’t happened in a few years.
He started a new antifungal that same week and had a severe behavioral dieoff reaction after about 4 days. :/ I was ready to put him on Ebay.
Thankfully I didn’t because he then started doing much, much better. It is SO nice to not be stuck in almost permanent survival mode. I’ve had my little Mommy vacation in which I just could not get over how much easier he is to parent. I suppose most would still find him quite challenging, but to me being used to impossible, it seems so easy. Not only easy but delightful.
His eye contact is much better. I don’t know how to explain the difference verbally, since he never, ever stopped talking before. It’s just more organized now. It’s more of a two way street is probably the best way to describe it. He’s much more able to focus. He’s working through solutions to problems on his own. He’s much better at controlling his reactions to things that upset him. Tonight I was just in awe of how straight he was walking. Normal walking. Wow.
He is going to OT twice a week now that we feel like addressing his sensory issues is actually possible. They were so out of control, that even his OT could not figure out what to do since what worked one time would be just the opposite another time for no apparent reason. It’s so nice to be able to dust of my tools once again and get back to helping him.
Don’t get me wrong, he’s certainly no perfect angel. But the difference in his ability to do better is just amazing. <3
We did another heavy metals urine test and sent it to the lab today. He also had some bloodwork done to check his liver enzymes. That’s necessary because of the antifungal he’s on. Hopefully we will have made some progress on the heavy metals. I do know they can be very difficult to get out of the body.
The biggest thing is I am so unbelievably grateful that we use Grace Based Discipline. The thought of punishing him for being out of control due to undiagnosed food allergies sends chills up my spine. Because there were times that I was tempted and times that I failed. Overall I believe that GBD saved our relationship by helping me to understand how hard it was for him even when I didn’t know what “it” was. GBD enabled me to show him God’s grace and love even when I didn’t feel like I had any to give. For that I will forever be thankful.